You have a legal right to read the notes your doctor writes regarding your office visits and your treatment, but few people do it and physicians and clinics aren’t always eager to share. But a test project is underway this summer to break down some of the barriers to doctor / patient communication by making the notes more accessible. The Open Notes Project was described in a Wall Street Journal article yesterday.
Imagine sitting down at the computer a few days after your last appointment so you can explain to your spouse EXACTLY how sick you are by reviewing your doctor’s notes together. Fun! With each passing day, prime time TV fades as an entertainment choice.
Doctors’ notes are said to be as varied as any other kind of writing, sometimes terse and puzzling, other times quite detailed and descriptive, occasionally funny, barbed and lyrical. At the Columbia University College of Physicians and Surgeons there is a technique called the “Atchley History”, which, according to the Annals of Internal Medicine, commands that the doctor’s description be so complete that each patient should “leap off the page”. Leaping off the page might be asking a bit much, especially if you’ve got a new hip or problems involving dizziness. But one thing is clear – If you’ve been to the doctor a lot, there is a hidden book about you, and you’re entitled to read it.
That may be a risky choice. A person’s writing can be revealing in unintended ways, and both patients and doctors have voiced concerns that “Open Notes” could lead to misunderstandings and resentment. But the evidence so far indicates that this level of communication is helpful for both parties.
I’m not so sure. I haven’t seen my doctor’s notes, but I hear he’s a frustrated novelist.
Spawning symptoms and complaints the way a summer thunderstorm drops tornadoes, D trudged into my office today to ask that I examine his eye. His gloomy profile darkened the office door with a heaviness that spoke of larger issues. “Clear my calendar,” I told the receptionist. “It’s going to be a long afternoon.”
They eye was clearly infected. I asked if someone had stuck a finger in there and he proceeded to unpack a tale of woe related to work and God knows how many years of thankless labor with early hours sacrificed in the name of blah, blah, blah.
While he was busy talking I nodded in false agreement and casually examined his mouth. Discolored teeth, too-thin lips and a plump, dappled tongue spat myriad worries in my lap – needless concerns about aging and hairline and skin, skeletal problems, cognitive lapses, and something about a toenail.
I scribbled meaningless squiggles on my pad to reassure him, and then beneath that rat’s nest of illustrated ennui I drew a pirate’s chest, a saltwater soaked lockbox covered with barnacles and seaweed with a big rusty iron padlock, a place to put D’s demented ravings where they could be promptly and permanently forgotten.
It seemed that his infected eye had swollen to twice its original size while we had been sitting there. “You’re going to die,” I wanted to tell him. “We all are. Get over it.”
Would you want to read your doctor’s notes about you?






