All posts by reneeinnd

Overcoming Adversity

Early in this blog’s history, we had a contributor who wrote exceedingly well and who was excited about life and his role in the world. His name is Aaron. Aaron was a reader and regular commentator in those early years.

This week, Dale Connelly, the founder of this blog, contacted me and Sherrilee about posting some writing by Aaron’s sister, Jessica. Dale commented:

“Aaron has multiple disabilities and gets around primarily in a powered wheelchair.  You may have seen him at some of the State Fair shows back in the day.  His family is organizing a Zoom event next Saturday, (August 7) to premiere a short (55 minute) documentary about Aaron and the difficult decisions his family faced when he was born.  The event is also a fundraiser to gather money to replace Aaron’s accessible van, his primary form of transportation.” 

We thought this was a great topic for a post. I have communicated with both Aaron and his sister, and this is how Aaron describes himself:

Aaron Westendorp is a musician, online variety music show host, and a self-advocate in Hopkins, Minnesota, who uses a communication device. Aaron has a brain stem lesion which causes spastic quadriparesis, a partial paralysis from the eyes down.  He still has a independent life and a fun personality.

The following is a heartfelt statement from his sister, Jessica Westendorp:

I could have written a different speech every day this year, that’s how many different feelings I have about Aaron and growing up with Aaron. I have humorous, light, jovial speeches, and dark, scary, cynical speeches that underscore Aaron’s evil side. Just kidding. Aaron doesn’t really have an evil side. That Aaron is a bright light, most of you already know. He has always been a calm being, open and waiting for whatever the next step might be. The only time I can remember Aaron loosing his cool was for a brief period in the 5th grade when math and after school studies pushed him to desperation and low lows. He got angry. In that time there was a moment when Aaron looked at me and sighed and it was if he said to me, “so…this is how it is”. And then, he was fine again, calm, collected, open and ready to keep going.

Aaron is disabled. I know this is news to you. It’s hard to see the disability when there is so much AARON to see. But, in case you didn’t get the memo, he is special, differently abled, challenged, a short bus super kid. Other words that were used on him were Duke, Duker, King of Kids, and because there is only so much wonder and excitement I can allow to follow him around, he is also a bratty kid brother.

Aaron’s disability was large. It was another person in the family always taking all of the resources and lightness out of anything. Trips to anywhere were filled with, “but are there curb cutouts? Can he fit through the door? Are there steps inside? Will we need to ask for special help maneuvering or accessing the bathroom?” And then, the weight of carrying all emergency equipment and healthcare needs with him. The backpack needed to be packed and repacked. He needed help with shoes and jacket. He needed to be loaded into the van and tied down. Then Jill and i would translate his finger spelling, “why don’t we go on more family outings?”

I feel heavy and angry re-living that. It was not glamorous. but, the humor helps. One time, when we were all tired and in a long stint of hard times, Mom and Aaron, and Jill went to Burlington Coat Factory. They got out of the van after parking in the handicapped spot. As my mom walked away from the van someone snarked about her use of the handicapped parking spot. Used to public perception often being askew there would usually be a kind reference to my brother or ignoring the problem. On this day my mom said, in her voice we all know as the “mom is not in a great place voice”, “WE ARE HANDICAPPED!”. “we”. “are”. “handicapped”. We are not, and yet, we are and the clashing perceptions combined with the fatigue of it all was the hilarity. And then, there were the helpers. The nurses and PCAs were there ALL THE TIME. Whether they wanted to be or not, they became part of the fabric of our family. They may remember us as a job. I remember them being in my home, sharing a space, and I remember processing my life in front of them. Like any family members some were super duper cool and others, we’ll say, clashed with our brand of special. But, they were there. They helped support the constant needs. Food prep. treatments, mobility, translation. My favorite of these people were those that understood the need to keep the light, the humor, and the irony alive, even and especially when I could not find these.

This all must have been so different for my parents. They had a childhood, a million years before and now they had the weight of this adulthood that they finessed and juggled and braved with faces of intensity and love. But for Jill, Aaron, and I this was our childhood. The pieces of it leave deep impressions. The shiny medical equipment, the smells of medicine, the short quick pace of a nurse who is tasked all become your normal. I will always be a force of quiet, deep love, forever broken by the immensity of daily, weekly, monthly, and yearly struggles that are inexplicable in this speech. I am full of gratitude and am privileged to have learned so much, but due to broken perceptions and realities faced and viewed often, I will also carry a force of anger, always, a deep understanding of disparity and injustice.

Thank you for showing up. Thank you for loving the little brother i worked hard to push and challenge. Thank you for loving this guy who I prayed for, who was surrounded by the light of many prayers. Thank you for knowing that there is no clear narrative here, only people with real needs, hopes, and aspirations all in real time. 

Here is the hyperlink to the video regarding Aaron.

Who do you know who has overcome adversity? How did they do it? How have you overcome adversity?

Lending a Hand

On Saturday morning, Husband and I were in the garden preparing to remove our spent peas plants and the wooden frames we had erected for the peas to grow on, when the 5 year old plant scientist from next door asked if he could help us pull weeds. We said of course he could, so over he came, and began pulling pea vines out of the ground and manfully carrying armloads of them to the garbage bag Husband held open. Of course, any time we spied a viable pod we shelled it and gave him the peas to eat.

Our young friend loves to help us in the garden, and wants to know everything about the plants. He has shown an intense interest in gardening since we met him when he was 3. I explained that the white dust accumulating on our clothes was powdery mildew from the pea vines. He alerted me to the presence of flea beetles in the kohlrabi. He took great delight in the small green caterpillars he found where the pea roots had been. We then searched for butterflies in the Cone Flowers, and I reminded him that he and his sister were welcome to come over and pick the red currants from our bushes. We predict he will become a horticulturist at a major university.

Later in the day, his mother decided it was time to clean the small storage shed in their back yard, and his father had him pick up small twigs and branches from the front lawn. He was far less happy doing that than helping us. Husband commented that it is always more fun helping adults who aren’t your parents.

Who were the adults you liked to help when you were a child? What were your most disliked chores at home?

Food Opportunism

The peach man arrived in town last week. He is also the cherry man, and comes to town a couple of times a week in the summer selling Washington and Montana cherries and Washington peaches in the mall parking lot. His wares are hard to resist, and we bought a crate of lovely organic Washington peaches from him. We can’t find Washington peaches in the stores here.

Our vegetable garden is starting to produce a lot now, and we are scrambling to use up all that we harvest, either by eating now or freezing. Buying a crate of peaches was rather impulsive. The peaches ripened fast, so this weekend we had an additional scramble to use them up. I used 9 pounds in peach pie filling, which I froze. Husband looked up beet and peach salads. He has yet to make one, but the recipe he chose has champagne in it. I found a peach and pasta salad with arugula and goat cheese. I also made a peach quick bread. There is no rest for us in late July.

What do you find hard to resist buying? What is your favorite peach recipe? Made any impulse purchases lately?

Tableau

The following link will take you to a fascinating photography event that happened just 90 miles east of us, in Bismarck. It involves a collaboration of many people to recreate, with some twists, a painting by Peter Breughel the Elder, and is influenced by the pandemic. A friend of ours, a costumer and retired drama coach and choir director, sewed a costume for the collaboration, and participated in the event. It involved using wet plate photography, something I don’t quite understand, but seems to be an old technique.

https://www.inforum.com/entertainment/art/7116663-Bismarcks-Shane-Balkowitsch-makes-photographic-history-with-wet-plate-collaboration

What painting would you like to recreate in real life? What would you like to set out to photograph? What are your favorite paintings?

Good City

Husband and I spent six days in Tacoma last week, with a couple of days on the Olympic Peninsula. The trip to the peninsula was rather more eventful than we wished, with daughter slipping into a deep tidepool and breaking her wrist, but, overall, it was a great trip.

Our Tacoma hotel overlooked Commencement Bay on Puget Sound. The city has made a nice development free and open to the public along the Sound, full of piers, shops, restaurants, running paths, and green space for people, pets, otters, sea birds, and sea lions to coexist. We watched sail boats, container ships, canoeists, and paddle boarders. I saw otters swimming around close to shore.

I took the header photo from our hotel room window. Just below our window we had a lovely view of a large cement area about the size of half of a basketball court that had recessed colored lights and sprays of water shooting out that all members of the public could access. Children, dogs, skate boarders, and adults ran through it. Lots of people sat on benches and talked. We also watched lots of bicyclists of all ages along the path that borders the Sound by the hotel, and families with small children in strollers. There was ample, free public parking. What we most appreciated was the diversity of ages, races, and income groups amongst the revelers. This area was meant for all, and not just for the privileged. On our last evening it looked as though the whole city had come for a visit. Husband commented that this is what a city should be like.

What are your favorite cities to visit?

Committing Thuricide, or, a GARDENer’s Anxiety

Husband and I are traveling to Tacoma, WA on Monday to see our Daughter. We will be gone for a week. This week we are prepping our gardens for our absence, watering like crazy and taking care of any garden pest and disease issues.

Due to the lack of humidity and the isolation on the Northern Great Plains, we have a comforting lack of pests and diseases in our gardens. We rarely need to combat anything, but there are a few persistent garden problems that require action.

We somehow have blight problems in our tomatoes and roses that require an application of fungicide. I sprayed with Daconil last night. Last year, we had flea beetles in our kohlrabies that required insecticide. I applied some Sevin to some chewed up kohlrabi plants last night. The potted tomatoes and peppers in the church garden need something called Rot Stop to combat Blossom End Rot. (Calcium uptake in a pot is difficult at times.) We also have cabbages that need help with cabbage worms with Thuricide, or Bacillus Thuringiensis, which is an organic worm deterrent. No worms in our Savoy cabbages!

How do you deal with life’s pests, garden or otherwise?

6 rms, rIv vu

We have two, 50 ft. tall spruce trees in our front yard that are full of birds and their nests. The Collared Doves begin the nesting season, followed by robins, then sparrows, finches, and Warbling Vireos. Chickadees and wrens make their presence known. We feed the birds sunflower seeds in the back yard, but not in summer. Still, our trees are full of birds all year. I wonder how they choose our trees and yard? There are tall trees all around, yet we have lots of birds. I suppose the grapes, hazelnuts, raspberries, strawberries, and currants in the yard are a draw.

I was in a rather fanciful mood the other day and imagined a bird real estate agent trying to sell bird condos in our trees. What would they say?

High rise living with ample food supply in the cold weather. Luxury summer garden worms. Indoor cat brushed outside, leaving fur for nesting. All the comforts of home. Good opportunities for subletting. No squirrels allowed.

The blog title, by the way, is from a Broadway play from the 1970’s. I have no idea why it came to mind.

How would a bird real estate agent list your yard? What are your experiences buying property?

A Delight to the Eyes

Our hot weather retreated last week, and by Friday it had cooled off substantially. Gentle rains came, and I stood at the front door on Saturday watching the rain fall straight down, with no wind, which is rare here. It was a delight to watch.

Our roses are blooming, and the garden veggies are looking strong and healthy. We weeded all over our flower and veggie beds, laying down newspapers and covering them with dirt to keep the weeds minimized for the season. The absence of weeds is so lovely, and the plants stand out and look really nice. I had forgotten how pretty eggplant plants are. There are visual delights all around. I just have to remind myself to look for them.

What has delighted your senses lately?

Annoying Coworkers

I have been fortunate in my work career to have mostly affable and supportive coworkers. True, there have been a couple of real negative doozeys, but I outlasted them. I am currently contending with an annoying coworker who really means well, and that is much of my problem with her.

The person in question doesn’t even work in my building, and works 100 miles away, only sometimes coming to my workplace every other month or so. Her job is to make my job easier, but that isn’t how it always turns out. She is to help make sure my testing computers are working appropriately, that the psychological test scoring programs are up to date, and that my testing forms and supplies are ordered as needed. She usually does a great job. She works really fast. She is friendly, competent, and energetic. We communicate most frequently via email and instant messaging.

I guess my main issue with this coworker is the manner she goes about doing things. Every time I encounter her, I have to bite my tongue and not ask her if she took her Ritalin (an ADHD medication) that day. I don’t even know if she has ADHD, but she is very impulsive, doesn’t listen, and can’t read the room, so to speak, on how she is coming across.

Last week she was very involved replacing our three aging testing computers with new computers, and transferring our scoring programs to the new computers. In the process, she managed to erase forever the testing results of hundreds of people we had tested over the years. There are hard copies of the results in client files, but at least we had them stored in the computer in case something happened to our paper files. She didn’t get the new computers hooked up to the correct printers appropriately , and I couldn’t print any interpretive reports, only dozens of pages of gobbledygook. She had already left to go back to Bismarck, so our tech guy had to fix it the next day. He told me he had warned her that what she did with the printer drivers wouldn’t work, but, as usual, she didn’t listen.

One day, after a particularly frustrating back and forth messaging fest over her insistence that a scoring program was installed on one of the computers when it wasn’t, she asked if I would go in to the testing room and take photos of the serial numbers of the computers so that she cold access them remotely to see the situation for herself. I was somewhat appalled that she would even ask me to do that, given how our messaging conversation was going. I guess she couldn’t tell that I was becoming increasingly agitated in my texting, spelling out words in all capitals and ending sentences with multiple exclamation points. I had enough by that time, and curtly refused. She came out the next day and got it all fixed. She apologized for not believing me and offered to buy me some flowers or chocolates. I told her it wasn’t necessary, and that it was enough that she had come out and fixed everything.

Tell about some of your more interesting coworkers. Have you ever felt like murdering someone at work?

Confusing directions

We like to grow dahlias in our garden, even though our winters are too cold for them to winter over. We don’t have a cold room in our house to store dug up dahlia tubers over the winter to replant in the spring, so we order new tubers every year from wonderful place in Washington State-Swan Island Dahlias. Their instructions for successful dahlia growing are sort of confusing.

We are to plant the dahlia tubers in rich, moist, soil, but are instructed to not water the tubers until the shoots emerge from the soil. They will rot if we do. It may be ok to water if it is dry or if they are in pots, but that is dicey. It is hard to know what we are to do. What is too dry, and what is too wet? I am happy to report that five out of seven dahlia tubers are emerging from the soil with some watering here and there, given our dry spring, but I still have anxiety about the watering issues. I still don’t know what I am to do!

What are some confusing directions you recall? When were you at a loss about what to do?