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Overcoming Adversity

Early in this blog’s history, we had a contributor who wrote exceedingly well and who was excited about life and his role in the world. His name is Aaron. Aaron was a reader and regular commentator in those early years.

This week, Dale Connelly, the founder of this blog, contacted me and Sherrilee about posting some writing by Aaron’s sister, Jessica. Dale commented:

“Aaron has multiple disabilities and gets around primarily in a powered wheelchair.  You may have seen him at some of the State Fair shows back in the day.  His family is organizing a Zoom event next Saturday, (August 7) to premiere a short (55 minute) documentary about Aaron and the difficult decisions his family faced when he was born.  The event is also a fundraiser to gather money to replace Aaron’s accessible van, his primary form of transportation.” 

We thought this was a great topic for a post. I have communicated with both Aaron and his sister, and this is how Aaron describes himself:

Aaron Westendorp is a musician, online variety music show host, and a self-advocate in Hopkins, Minnesota, who uses a communication device. Aaron has a brain stem lesion which causes spastic quadriparesis, a partial paralysis from the eyes down.  He still has a independent life and a fun personality.

The following is a heartfelt statement from his sister, Jessica Westendorp:

I could have written a different speech every day this year, that’s how many different feelings I have about Aaron and growing up with Aaron. I have humorous, light, jovial speeches, and dark, scary, cynical speeches that underscore Aaron’s evil side. Just kidding. Aaron doesn’t really have an evil side. That Aaron is a bright light, most of you already know. He has always been a calm being, open and waiting for whatever the next step might be. The only time I can remember Aaron loosing his cool was for a brief period in the 5th grade when math and after school studies pushed him to desperation and low lows. He got angry. In that time there was a moment when Aaron looked at me and sighed and it was if he said to me, “so…this is how it is”. And then, he was fine again, calm, collected, open and ready to keep going.

Aaron is disabled. I know this is news to you. It’s hard to see the disability when there is so much AARON to see. But, in case you didn’t get the memo, he is special, differently abled, challenged, a short bus super kid. Other words that were used on him were Duke, Duker, King of Kids, and because there is only so much wonder and excitement I can allow to follow him around, he is also a bratty kid brother.

Aaron’s disability was large. It was another person in the family always taking all of the resources and lightness out of anything. Trips to anywhere were filled with, “but are there curb cutouts? Can he fit through the door? Are there steps inside? Will we need to ask for special help maneuvering or accessing the bathroom?” And then, the weight of carrying all emergency equipment and healthcare needs with him. The backpack needed to be packed and repacked. He needed help with shoes and jacket. He needed to be loaded into the van and tied down. Then Jill and i would translate his finger spelling, “why don’t we go on more family outings?”

I feel heavy and angry re-living that. It was not glamorous. but, the humor helps. One time, when we were all tired and in a long stint of hard times, Mom and Aaron, and Jill went to Burlington Coat Factory. They got out of the van after parking in the handicapped spot. As my mom walked away from the van someone snarked about her use of the handicapped parking spot. Used to public perception often being askew there would usually be a kind reference to my brother or ignoring the problem. On this day my mom said, in her voice we all know as the “mom is not in a great place voice”, “WE ARE HANDICAPPED!”. “we”. “are”. “handicapped”. We are not, and yet, we are and the clashing perceptions combined with the fatigue of it all was the hilarity. And then, there were the helpers. The nurses and PCAs were there ALL THE TIME. Whether they wanted to be or not, they became part of the fabric of our family. They may remember us as a job. I remember them being in my home, sharing a space, and I remember processing my life in front of them. Like any family members some were super duper cool and others, we’ll say, clashed with our brand of special. But, they were there. They helped support the constant needs. Food prep. treatments, mobility, translation. My favorite of these people were those that understood the need to keep the light, the humor, and the irony alive, even and especially when I could not find these.

This all must have been so different for my parents. They had a childhood, a million years before and now they had the weight of this adulthood that they finessed and juggled and braved with faces of intensity and love. But for Jill, Aaron, and I this was our childhood. The pieces of it leave deep impressions. The shiny medical equipment, the smells of medicine, the short quick pace of a nurse who is tasked all become your normal. I will always be a force of quiet, deep love, forever broken by the immensity of daily, weekly, monthly, and yearly struggles that are inexplicable in this speech. I am full of gratitude and am privileged to have learned so much, but due to broken perceptions and realities faced and viewed often, I will also carry a force of anger, always, a deep understanding of disparity and injustice.

Thank you for showing up. Thank you for loving the little brother i worked hard to push and challenge. Thank you for loving this guy who I prayed for, who was surrounded by the light of many prayers. Thank you for knowing that there is no clear narrative here, only people with real needs, hopes, and aspirations all in real time. 

Here is the hyperlink to the video regarding Aaron.

Who do you know who has overcome adversity? How did they do it? How have you overcome adversity?

Lending a Hand

On Saturday morning, Husband and I were in the garden preparing to remove our spent peas plants and the wooden frames we had erected for the peas to grow on, when the 5 year old plant scientist from next door asked if he could help us pull weeds. We said of course he could, so over he came, and began pulling pea vines out of the ground and manfully carrying armloads of them to the garbage bag Husband held open. Of course, any time we spied a viable pod we shelled it and gave him the peas to eat.

Our young friend loves to help us in the garden, and wants to know everything about the plants. He has shown an intense interest in gardening since we met him when he was 3. I explained that the white dust accumulating on our clothes was powdery mildew from the pea vines. He alerted me to the presence of flea beetles in the kohlrabi. He took great delight in the small green caterpillars he found where the pea roots had been. We then searched for butterflies in the Cone Flowers, and I reminded him that he and his sister were welcome to come over and pick the red currants from our bushes. We predict he will become a horticulturist at a major university.

Later in the day, his mother decided it was time to clean the small storage shed in their back yard, and his father had him pick up small twigs and branches from the front lawn. He was far less happy doing that than helping us. Husband commented that it is always more fun helping adults who aren’t your parents.

Who were the adults you liked to help when you were a child? What were your most disliked chores at home?

Dee

Unlike my mother, whose best friend is someone she has known since kindergarten, I don’t have any friends from childhood.  We moved many times before I was in high school, never in one place long enough to make any relationships last.  I had friends in high school but going away to college in Minnesota and basically never coming back stretched and broke those ties.  

I left college after two years and started my life (as I used to say) in Northfield, so I could be near my boyfriend.  My second job in Northfield was at the brand new Ole Piper Inn and that’s where I met Dee (names changed to protect the innocent).  Although the job only lasted about 10 months before the Inn closed down, it was long enough to cement our friendship.  When Dee moved to the Ole Store, I went with her: she was the manager and short-order cook, I was the baker and occasional waitress. 

Dee is originally from the southern part of the country and hates the cold weather.  Most mornings I would pick her up on the way to the store (I had a car by then) and even with a short ride, she would come out of her house bundled up as if she was expecting to trek across Antarctica.  She always said she was waiting for her youngest two kids (she has five) to graduate so she could flee the frozen tundra.  Of course she is still here 45 years later.

We had a great time at the Ole Store.  The Ole Store was part of a grocery store/butcher shop and sometimes we’d come in to find various chunks of meat in the restaurant fridge that needed to be used up.  Once the owner left moose meat.  We were joking around, trying to figure out what to do with it and I said (without thinking), “what about spaghetti and moose balls?”  Dee laughed so hard that her side hurt and she had to sit down.  Do this day, I can reduce her to a puddle just by saying “moose balls”.

When I married my wasband and moved to Milwaukee, Dee used to be startled into silence whenever he answered the phone, since he had never picked up the phone in my Northfield apartment.  Once he answered the phone, said nothing for a minute and then handed me the phone…. “It’s Dee.”   It was indeed, although she hadn’t identified herself.  He told me later than whenever there was silence, he knew it was her.  When we were first friends, she referred to wasband as the Greg-Person.  Later she shortened that to GP.

For many years Dee and her youngest son worked at the Renaissance Festival every fall and it was always fun to see them.  She did a wonderful costume for Child with lots of petticoats and ribbons.  And or course, she knew everybody so we always got good food at a great discount.  I made the wedding cake for this son when he got married.

Her family has a timeshare in Florida that they visit every summer and Dee’s favorite way to travel is to fill up the van with kids and grandkids and drive straight through.  When YA was younger, she was included a couple of times. 

Dee reminds me a lot of my mother.  She is extraordinarily caring and she “collects” people.  Once you fall into her orbit, her gravity holds you there.  For example, one of her daughters was married for a few years and had a step-daughter.  When the daughter split up with the husband, the step-daughter came to live with Dee.  Now that step-daughter has kids of her own and they all happily refer to Dee as Grandma.  Dee’s life is filled with stories like this.  I am one of her collect-tees and she has always been there for me.

She’s going through a very rough time right now with a diagnosis that will most likely shorten her life so I’ve been thinking about our long friendship and how much I treasure her.

Who is the friend you’ve had the longest?

Scrapping By

I inherited a few nightmares when I purchased this house (hence the excellent price).  The folks who lived here before me had a fairly “jerry-rig” attitude about things.  Although I can completely get behind the path of least resistance, over the years I’ve had to fix and/or update a bunch of stupid stuff.

One of the biggies is the textured paint that they used in several places.  I’ve managed to get rid of in most places, but the front porch is going to be the end of me.  The porch is concrete and has been painted repeatedly; the first layer was a peach color, the second layer was a pale green and the final textured level was beige.  Over the years, it was cracked and chipped and generally become an eyesore that is driving me crazy.  Then several years back, I ripped out the ratty indoor/outdoor carpet that was stained and torn.  I bought a bunch of stick down carpet squares from a neighbor who was moving and I thought, this is the time to re-finish the porch.

The paint was in such bad shape, I assumed (yeah, I know….) that we would be able to fairly easily scrap it off like we had in the other rooms.  Surprise, surprise.  Several authorities (hardware store, paint store) have basically said that we’re hosed unless we bring in professionals who can sand blast it.  $$$$.   So we are scraping by hand.  This is very boring work and hurts my hands; the only way I can make myself stay with it is to keep each session down to 20 minutes.  Otherwise I don’t go out there.  All this hot weather hasn’t helped.  Last summer YA tried some stripper, but it was nasty and messy and didn’t actually work all that well. 

This project is in its third summer.  YA started out strong but now that she’s working full time, her interest has dwindled significantly.  I’d really like to get this done before the cold weather arrives, but I’m not holding my breath.

Any projects that took an embarrassing long time?  That you’ll admit to?

Carried Away

I feel like a horse that has been let out of the barn after a long winter.

I had my first dinner party last night.  Not really a dinner party but my bff and her husband came over to grill.  (The small gathering that YA let me hold for her MBA graduation didn’t count as a real party since she placed so many restrictions on me.)  For this dinner, all the stops were let out; even by my standards, I got a little carried away.

You’re asking – how could she get carried away with grilling?  We had decided on Boca Burgers and corn.  Then YA said she didn’t really like Boca Burgers, could I get her Grillers (another veggie burger)?  And could we please have potato salad and coleslaw.  Then at the last minute I decided I really wanted veggie brats.  My girlfriend showed up with bread salad.  As we sat down for dinner, this is what else we had on the table:

  • Hamburger and hot dog buns
  • Catsup, yellow mustard, grey mustard, Miracle Whip, pickle reslish
  • Lettuce leaves, shredded lettuce
  • Sliced avocado
  • Slice white cheddar (for the burgers)
  • Sliced white onion, diced white onion
  • Caramelized onions
  • Sauteed mushrooms
  • Chopped jalapenos
  • Chopped cilantroa
  • Sliced tomatoes, diced tomatoes
  • Cotija cheese
  • Chopped scallions

To say this was on the table is a little misleading.  We actually pulled up the garden table for some of the overflow.  We had dessert as well: blender lemon pie with blueberry compote and whipped cream.

It was wonderful but as we were cleaning up, we had A LOT of leftovers. I just couldn’t help myself – after 18 months of only cooking for YA and myself, I just couldn’t stop.  I had actually thought about sauerkraut and Mexican corn as well, but ran out of time. And we had initially thought we would have chips and salsa as an appetizer, but as I was chopping and prepping I realized we didn’t need to fill up on chips before dinner with everything I was preparing.  Just as well, as everybody was stuffed by the end of the evening!

What’s the last thing you’ve gone overboard with?

Monday Mystery

Main character: Relatively intelligent woman with cooking skills

Location:  A kitchen loaded with pots, pans, utensils and cooking toys

Weapon:  Kitchen Pro 2000

Plot:  The main character, despite being careful, always manages to cut herself when using her mandoline.  The latest attack by the mandoline occurred not when she is actually using it but as she is moving back to the sink to wash a dish.

Mystery:  Why does the mandoline have it out for her?

Any kitchen mishaps you’re willing to share?

The List

I’m not going to bore you with my love of lists – this has been catalogued many times on the Trail. 

As I was straightening up in the breakfast room after my return from St. Louis, I found a folded piece of paper on the table.  Having been burned more than once by tossing out something that is needed, I opened it up to see what it was.  I found a list of various foods sorted by whether they were to be picked up at Target or Trader Joe’s. 

It took me a minute to realize that this was not a list I had put together (although it could have been) but something that YA had done in my absence.  And not just a list jotted down on a post-it note, but clearly a computerized list.  With a title!   I’ll admit I got a little teary.

Do you have a trait that you’d like to pass on – either to offspring or acquaintance?

Movie Wars

You all know I adore my mom.  And for the most part, we do quite well when we spend time together but the 9 days I spent in St. Louis did stretch our patience a few times. The place where we have the most friction is the television.  I’m happy to leave the tv off most of the time but Nonny has habits that she doesn’t want to relinquish.  This starts in the morning as she likes to watch the news.  I prefer my news in short, concentrated bursts and would really just like to read my news online.  Both the tragedy of the falling condo and the Bill Cosby reversal were in the news while I was there and both stories got re-hashed and re-hashed.  I was working in the morning so pretty much tried to tune it out but it was difficult.

The evenings caused more tension.  Nonny likes the Hallmark movies, especially the romances and the holiday films.  And I’m sure I’m not giving any of you news when I say that I detest the Hallmark Christmas movies (which are playing 24/7 beginning two weeks ago and through July).  This is not a secret to Nonny but despite my saying so more than once, she filed this fact away.  After a couple of nights we decided to switch back and forth.  First I would pick a movie, then she would pick a movie.  You’d think we’d both be adult enough for this solution, wouldn’t you?

She didn’t like Ant-Man and the Wasp at all.  I thought she might because the Ant-Man movies are much lighter than some of the other Marvel universe movies.  I was wrong.  She had trouble following the storyline and got impatient pretty quickly.  Then she chose one of her Christmas movies, although I know she’d already seen it because she recounted the plot to me in the first 10 minutes.  I pretty much ignored the movie, but she kept muting the tv during the commercials to “talk about it”.  I was more testy than I should have been.

I chose the old Woman in White with Alexis Smith, Eleanor Parker and Gig Young.  How could this go wrong?  Well, the thought the Sydney Greenstreet character was too creepy and complained that she just didn’t like movies where the bad guys held so much sway over the good guys.  She got quite crabby.  But not as crabby as I got when she chose another Christmas movie.  I will admit that I pouted and decided it was a good time to do laundry; that took me out of the condo (laundry machines are across the hall) several times.  Unfortunately she was convinced that I needed to hear the song at the end of the movie and called me to come back to the living room.  Twice. 

Luckily I found How to Marry a Millionaire with Lauren Bacall, Marilyn Monroe and Betty Grable – this turned out to finally be something we could agree on.  It was funny (with great costumes) and since Nonny had seen it before, she already knew the plot line.  It was nice to have something we both enjoyed as our last movie of my trip.  I’m not sure what would have happened if I had stayed in St. Louis longer.  Is there such a thing as bad-movie-induced-matricide?

What’s the worst movie or tv show you’ve been subjected to lately?

Let’s Go Right to Dessert!

Today’s post comes to us from Steve.

I have spoken critically in this forum about my mother’s cooking. She was a typical 1950s Midwestern housewife cook, and I fear that isn’t a flattering standard. Unlike my classmates at college, many of whom grumbled bitterly about the food service, I thought I’d never eaten so well. But my mother took desserts seriously. I can forgive her those Jello desserts she served so often, for her cakes and pies were tasty. Relative to other areas of cooking, she did desserts well.

Her social world was centered on bridge clubs. The hostess of a bridge club meeting was expected to serve a dessert so special that club members would be talking about it for days. At one bridge club meeting, Mom’s chocolate devil’s food cake was a huge hit. Someone called out, “Charmion, this cake is wonderful! You have to share your recipe!” Mom didn’t have the nerve to admit that the cake began life as a Duncan Hines box mix. Her embarrassment doomed her to spend many hours one week researching library books for made-from-scratch chocolate cake recipes. She had to find a recipe that was both tasty and credible as the source of the cake she had served.

Each member of my family had a strong dessert preference. Dad thought nothing on earth could be better than apple pie. My mother loved her Graham Cracker Pie, a simple dish made from Eagle Brand Condensed Cream mixed with eggs and lemon, served in a crust that was smooshed graham crackers. My sister came to favor French silk chocolate pie. On my birthdays I always requested a white angle food cake that was heavily frosted with chocolate-flavored whipped cream.

When I tried to teach myself to cook I thought the logical thing would be to collect recipes. When a recipe appealed to me, I’d type it out and add it to my personal recipe book, kept on my computer’s hard drive. I see now that I collected about a hundred dessert recipes, of which I only ever used two. I’m actually not much of a dessert person. The really big sections of my cookbook are salads, chicken and soup dishes. My erstwife was a fine cook, but she too cared more about main dishes than desserts, so I failed to learn how to make good desserts from her.

While I’ve mostly ignored desserts most of my adult life, now and then something catches my fancy. When my erstwife and I traveled in the UK, we discovered a tiny London cafe that served crème brûlée, and I was totally smitten. Still am. I once won a writing contest whose reward was a free trip to the Florida Keys to flyfish for tarpon. While I never caught a tarpon, I sure made a pig of myself with Key Lime Pie, something I’d never encountered before. The dessert I’d now request on my birthday would be pecan pie served with a generous scoop of cinnamon ice cream.

What’s your favorite dessert? Which desserts do you remember most fondly? Do you have a recipe to share?

What to Read Next?

Last month Bill asked “How do you judge a cookbook at first glance?”  For me the first thing a cookbook has to have is a great photo on the front to initially catch my interest.  Then it needs to be a niche that I’m interested in (vegetarian, ethnic, baking).  That’s enough to get me to request it from the library.  Once I get the book, the quality of the production is key, how easy it is to follow the directions, how many recipes appeal to me, will the ingredients be do-able?  Probably 50% of the cookbooks that I peruse from the library go back and I never think about them again.  Then about 49% might have a recipe or two that I’ll copy for myself (I have a big white binder for these).  Then there is the rare 1% that I feel I would to have my own copy of and then I try to find it as inexpensively as possible.  And then I have to get rid of an existing cookbook.  Cookbook shelving unit is cram-packed!

All of this quantifying led me to another thought.  How do you judge ANY book at first glance?  How do you decide to read a specific book?  And if you choose badly, what do you do about it?

For me, great titles are key; it needs to be interesting, maybe some word play.  “Dragons” in the title is a gimme.  The phrase “mercenary librarians” on the cover of a book was too tempting to pass up last month.  It’s a toss-up whether author or subject matter is the next ingredient for me.  I’ll pretty much read anything by my favorite authors.  I even read Michael Pollan’s LSD book last year.  Only a very few authors have failed to keep my interest.  Poor Barbara Hambly lost me between the vampire books and the nasty ice queen series.  If a book has an author with whom I am unfamiliar, then subject matter can draw me in.  Of course, I’m curious about so much stuff that pretty much anything can work in this respect.  I’m not a romance fan and I get irritated pretty quickly with historical fiction but even having said that, I will still occasionally read something in these genres.  I prefer fantasy to science fiction.  I’ve read my fill of WWII titles the last few years but if something comes well-recommended, I might put it on the list.

There is another category of “what do read” for me because I’m one of those folks who reads multiple books concurrently.  At any given time I have a book on CD in the car, an audiobook on my pc and a variety of books piled up in my bedroom.  When I decide I want to read, I have to decide WHICH of those books to pick up.  Most of the time, it’s my mood that decides, but if a book is coming due soon and I can’t renew it, that factor often takes precedence.  Now that the library has re-instituted due dates, I have to think about this more.

I am also a book-abandoner.  I decided about 15 years ago, after struggling for weeks to finish Blood on the Snow by Tunstall, that life is too short.  There are so many books published each year that no one could read them all so if I don’t finish a book, it won’t doom the publishing industry.  I once quit reading a book on page four; I already had the feeling that I wouldn’t enjoy the characters or the plot.  Authors beware – you gotta hook me fast!

So the answer to Bill’s question is complex.

How do YOU decide what to read?  Can you abandon a bad choice?